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A Message From Stephen Bobik jr.
I am walking in support of the Ronald McDonald house of the greater Hudson Valley for my niece Lorelai, who was diagnosed with Pierre Robin sequence and stickler syndrome, we walk to spread awareness of her diagnosis’s so we can spread Awareness of this progressive disorder Sticklers Syndrome. This conditions isn’t widely known and or talked about. We hope you will support us in also sharing and spreading awareness of Sticklers.
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Location / Venue
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- Address:
- 61 Parker Avenue
- Poughkeepsie, NY 12601
- USA
- Time:
- May 19, 2024 12:00pm - 3:00pm ET